At Acorns Children’s Hospice a dedicated team provides specialist palliative care for life limited and life threatened babies, children and young people and support for their families. This support is offered from three hospices based in Worcester, Birmingham and Walsall, as well as in the family home and community.
Brainwave is a charity that exists to help children with disabilities to achieve greater independence by aiming to improve mobility, communication skills and learning potential through a range of educational and physical therapies. The Brainwave Therapy Programme aims to develop the maximum potential of each child by taking an integrated approach to their physical and cognitive development and by aiming to enhance a child’s social skills and emotional well-being. They provide two full days, with two therapists for an initial assessment, followed by one-day reassessments every 4-6 months.
The Child Brain Injury Trust provides non-medical services to families affected by childhood acquired brain injury across the UK. A dedicated team of professional ABI Co-ordinators and volunteers give their expertise, commitment and enthusiasm to help families get the support they need. You can contact CBIT at any time, but generally the earlier you make contact, the quicker appropriate systems of support can be put into place.
A burn injury is for life. The scars are physical as well as psychological and can present life long challenges. The Children’s Burn Trust aims to make those challenges easier to bear and to help children and young people to grow up and lead as happy and healthy a life as possible.
The Children’s Burn Trust is dedicated to helping NHS staff to restore the individual to their pre-injury condition and potential in terms of aesthetic, function and intellect.
They are able to provide help with rehabilitation, finances, treatment and emotional support.
Contact a Family is here to make life a little bit easier for families with disabled and special needs children. Our parent advisers can offer information and support on a whole range of issues including education, benefits, social care, medical information and more. They run free workshops for parents and support groups including a workshop on dealing with challenging behaviour; sleep issues; stress and coping, supporting siblings, and transition to adulthood.
Family Fund provides grants and services to low income families raising disabled or seriously ill children. Grants are available for a wide range of items, such as washing machines, sensory toys, family breaks, bedding, tablets, furniture, outdoor play equipment, clothing and computers.
Merlin’s Magic Wand is a charity providing ‘Magic Spell’ wishes including tickets and days out at Merlin Entertainments attractions (such as Legoland and Sea Life Centres). They also work within local hospitals and hospices to bring entertainment to children and create ‘magic spaces’ for them within clinical surroundings.
Over The Wall is a UK based charity for children with serious illness and disabilities, and their families, to discover a world of mischief and magic. A place where they can be brave and have fun with others.
Rainbow Trust supports families who have a child aged 0-18 years with a life threatening or terminal illness and need bespoke support.
Rainbow Trust Family Support Workers provide a life line to families and children, they support the whole family including parents, carers, the unwell child, brothers, sisters and grandparents. They bring support and help to families who need it at home, in hospital and in the community.
Any family can receive support from the moment of their child or young person’s diagnosis. The kind of support they provide is hugely varied and depends on your needs.
Reach supports parents, children and young people who are affected by upper limb deficiency, Reach provides advice and guidance to parents and teachers as well as providing a support group run by families who have had similar experiences.
Redthread Youth Workers utilise their unique position embedded in the emergency departments alongside clinical staff, to engage young victims of assault and exploitation and help them change their future. Redthreads extensive experience is that when young people are out of their comfort zone, alienated from their peers, and often coming to terms with the effects of injury, it is a time to create positive change. In this moment many are more able than ever to question what behaviour and choices have led them to a hospital bed and, with specialist youth worker support, pursue change they haven’t felt able to before. Please note, referrals to Redthread can only be made if the patient is admitted to the Emergency Department / A&E of a hospital in which a Redthread team is embedded.
St Giles is a charity using expertise and real-life past experiences to empower people who are not getting the help they need, people who are hard to engage because they have been failed time and time again – held back by poverty, exploited, abused, dealing with addiction or mental health problems, caught up in crime or a combination of these issues and others.
The Children’s Trust runs a range of specialist care, education and therapy services for children and young people from across the UK. The Childrens Trust runs the UK’s largest childrens acquired brain injury (ABI) rehabilitation centre where children can recieve world class rehabilitation. The Children’s Trust offer rehabilitation services to NHS patients and on a private fee paying basis.
The Children’s trust provides on-line support for families affected by acquired brain injury via The Brain Injury Hub. Their website offers a wealth of practical advice and information about a condition that’s often misunderstood. There is also an on-line forum giving families the opportunity to share their stories and experiences.
Together for Short Lives is here to make sure seriously ill children and their families can make the most of every moment they have together. They offer confidential emotional support and information on a range of issues and provide easily digestible information about available support so families can spend less time searching for help and have more time together.
Whizz-Kidz provides powered wheelchairs, manual wheelchairs, sports wheelchairs, trikes and buggies to give young people with a physical disability independence. They also run clubs, camps, wheelchair skills training and work placements to help develop confidence and independence in children.